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My Digital Closet: Finding Independence and Style with Cerebral Palsy

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Living with cerebral palsy, I’ve learned to navigate the world with a unique perspective. One of the biggest misconceptions about cerebral palsy is that it affects cognitive abilities. For many of us, it’s purely a physical disability. This means that while I may need assistance with some physical tasks, my mind is sharp, and I know exactly what I want—especially when it comes to fashion.

Growing up, my mom played a huge role in helping me develop a sense of independence. Every morning, she would ask me what kind of clothes I wanted to wear for the day. For example, she would ask, “Do you want jeggings or leggings?” I would say which category, and then she would pull out two options for me to choose from. This daily routine allowed me to have a say in my outfit while ensuring I had the support I needed to get dressed.

This method worked well through my childhood and teenage years. It was a simple and effective way to involve me in the decision-making process. However, as I got older, it started to feel a bit childish. After all, I’m now a 25-year-old woman, and I want to pick out my outfits like any other adult.

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We experimented with a few different approaches. At one point, we tried stacking clothes so I could choose from a wider selection. But, it was cumbersome and didn’t give me the freedom I craved. That’s when inspiration struck.

The solution came in the form of technology. We took pictures of all my clothes and organized them into a digital folder on my computer. Now, every morning, I simply pull up the pictures and show my personal care assistants exactly what I want to wear. If an outfit is in the laundry, I just pick another one. It’s that simple and incredibly empowering.

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This new system has been a game-changer. Not only does it save time, but it also gives me the freedom to fully express my personal style without needing someone to sift through my wardrobe for me. It’s a small change that’s made a big difference in my daily routine.

I even get to pick out my own underwear and bras. You might think this is a minor deal, but trust me, it’s amazing how empowering it is to choose your own underwear as a woman.

Living with cerebral palsy means constantly adapting and finding creative solutions to everyday challenges. This digital wardrobe has allowed me to maintain my independence and feel more in control of my life. It’s a reminder that with a bit of determination, we can overcome obstacles and create a life that’s authentically our own.

5 thoughts on “My Digital Closet: Finding Independence and Style with Cerebral Palsy

  1. What a great solution! You should work on app for that and market it.

    And reading this post made me reflect. I apologize that while I was your nanny, I didn’t do a good job in the fashion independence zone.

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